Mendidik dan membesarkan anak autisme adalah sangat mencabar. Ibu bapa perlu berkorban banyak wang, tenaga dan masa untuk memenuhi keperluan anak autisme. Ibu bapa yang tidak mampu untuk memenuhi keperluan anak autisme adalah lebih cenderung untuk mengalami kelesuan melampau. Kajian lepas banyak memfokuskan kepada anak autisme, namun tidak banyak yang melihat secara mendalam tentang kelesuan melampau dan sokongan sosial dalam kalangan ibu bapa kanak-kanak autisme. Kajian ini bertujuan untuk meneroka faktor-faktor yang menyebabkan kelesuan melampau dan mengkaji bentuk-bentuk sokongan sosial dalam kalangan ibu bapa kanak-kanak autisme. Kajian ini menggunakan pendekatan kualitatif dan kaedah fenomenologi untuk memahami dan menghuraikan pengalaman ibu bapa bersama anak autisme. Seramai 10 orang informan terlibat dan kajian ini menggunakan teknik pensampelan bertujuan dan kaedah temu bual mendalam. Data kajian seterusnya di analisis menggunakan teknik analisis tematik. Terdapat lima faktor utama yang menyebabkan kelesuan melampau ibu bapa kanak-kanak autisme iaitu pendapatan isi rumah, kesedaran dan penglibatan ibu bapa, persekitaran ruang kehidupan, tingkah laku anak autisme dan penerimaan terhadap anak autisme. Hasil kajian juga mendapati bentuk sokongan sosial boleh dibahagikan kepada dua iaitu sokongan sosial ketara dan tidak ketara. Kajian ini merumuskan ibu bapa perlu diberi sokongan menyeluruh dan disediakan dengan maklumat yang terperinci berkenaan penjagaan anak autisme bagi mengurangkan kecenderungan kelesuan melampau.

Kata kunci: Kelesuan melampau; sokongan sosial; ibu bapa; kanak-kanak autisme

Abstract: Educating and raising children with autism is very challenging. Parents need to sacrifice a lot of money, energy and time to meet the needs of children with autism. Parents who are unable to meet the needs of children with autism are more likely to experience burnout. Many studies have focused on children with autism, but not many have looked in depth at burnout and social support among parents of children with autism. This study aims to explore the factors that cause burnout and examine forms of social support among parents of children with autism. This study uses a qualitative approach and phenomenological methods to understand and describe the experiences of parents of children with autism. A total of 10 informants were involved and this study uses purposive sampling techniques and in-depth interviewing methods. The data was then analysed using thematic analysis techniques. There are five main factors that cause burnout among parents of children with autism, namely household income, awareness and involvement of parents, living environment, behaviour of children with autism and acceptance of children with autism. The results of the study also found that forms of social support can be divided into two - tangible and intangible. This study concludes that parents need to be given comprehensive support and provided with detailed information regarding the care of children with autism to reduce the tendency of burnout.

Keywords: Parental burnout; social support; parents; children with autisme

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